On Sunrise, 17’s Maddie Janssen was joined by Liz Neuman, mother of two and board member for Angioma Alliance.
On New Year’s Eve, Angioma Alliance will be raffling a 1966 Shelby Cobra replica valued at over $60,000! All proceeds go to Angioma Alliance, a patient advocacy and research organization.
Raffle tickets are $100 each and the group is selling only 1,000 tickets. The drawing will take place on New Year’s Eve at the Crystal Palace.
Tickets can be purchased at Independent Detail located at 5116 Woodmere Drive, Monday through Friday from 7 a.m. until 5 p.m. or by calling (661) 331-6179 for delivery in Bakersfield.
You can also email Liz at Lzneuman@gmail.com.
This all started on New Year’s in 1999 when Liz and her husband rushed their two-year-old son Jake to the hospital with seizures. Jake needed emergency brain surgery to remove a hemorrhaging cavernous angioma in his brain. Sam, their second son, was not spared the illness. He has cavernous angiomas not only throughout his brain, but also in his legs, in addition to a benign brain tumor. There is no treatment for cavernous angioma, except to remove them surgically. Now a teenager, Sam has already survived five brain surgeries.
Cavernous angiomas are mulberry shaped leaky blood vessels in the brain and spinal cord. They can hemorrhage and cause stroke, seizures, paralyses and death. 1 in 500 people have a cavernous angioma, but Liz’s boys cavernous angiomas are due to a mutation on the CCM3 gene, which causes the most severe form of the illness. The boys already have over fifty brain lesions each and will continue to develop more each year. Like most teenagers, Jake and Sam are now planning for college and future careers. Unlike their friends, their future is uncertain.